Volume : 09, Issue : 12, December – 2022

Title:

23.IMPACT OF PEDIATRIC EPILEPSY ON HEALTH-RELATED QUALITY OF LIFE

Authors :

Mohammed Ahmed Alshadwi Alzahrani , Saleh Ali Alqarni, Ebtsam Ali Alghamdi,Riyad Mohammed Alghamdi, Hussain Abdullah Alghamdi,Ahmed Saeed Alshadwi, Ahmed Abdullah Alghamdi, Shakeer Mohammed Ali

Abstract :

Pediatric epilepsy is a chronic neurological disorder affecting millions of people globally. It is a heterogeneous condition that varies in terms of seizure variables, etiology, management, and neurological pathology presence. Some common symptoms associated with the condition are convulsions, jerking, and loss of control of bladder and bowel movements. Individuals are living with the condition, particularly children, experience numerous problems ranging from behavioral, educational, psychological, social, educational., and cultural issues, which in turn negatively impact their life. Therefore, this document investigates how PE impacts life. PE impacts the lives of individuals living with the condition and their families. It is associated with learning difficulties, especially in the CWE, causing education underachievement in their education. Moreover, the condition interferes with child social life, where they are excluded from social and physical activities. In schools, CWE experiences limitations when playing with other children. Lastly, the disorder contributes to emotional and behavioral problems.

Cite This Article:

Please cite this article in press Mohammed Ahmed Alshadwi Alzahrani et al, Impact Of Pediatric Epilepsy On Health-Related Quality Of Life.., Indo Am. J. P. Sci, 2022; 09(12).

Number of Downloads : 10

References:

1. Aldenkamp, A., Besag, F., Gobbi, G., Caplan, R., Dunn, D. W., & Sillanpää, M. (2016). Psychiatric and behavioral disorders in children with epilepsy (ILAE Task Force Report): adverse cognitive and behavioral effects of anti-epileptic drugs in children. Epileptic Disorders, 18(s1), S55-S67.
2. Baumer, F. M., Cardon, A. L., & Porter, B. E. (2018). Language dysfunction in pediatric epilepsy. The Journal of pediatrics, 194, 13-21.
3. Berg, A. T., Altalib, H. H., & Devinsky, O. (2017). Psychiatric and behavioral comorbidities in epilepsy: a critical reappraisal. Epilepsia, 58(7), 1123-1130.
4. Camfield, C., Breau, L., & Camfield, P. (2003). Assessing the impact of pediatric epilepsy and concomitant behavioral, cognitive, and physical/neurologic disability: Impact of Childhood Neurologic Disability Scale. Developmental medicine and child neurology, 45(3), 152-159.
5. Centers for Disease Control and Prevention. (2020, September 30). Epilepsy fast facts. Centers for Disease Control and Prevention. Retrieved December 24, 2022, from https://www.cdc.gov/epilepsy/about/fast-facts.htm#:~:text=Active%20Epilepsy&text=This%20is%20about%203.4%20million,million%20adults%20and%20470%2C000%20children.&text=According%20to%20the%20latest%20estimates,17%20years%20have%20active%20epilepsy.
6. Cianchetti, C., Messina, P., Pupillo, E., Crichiutti, G., Baglietto, M. G., Veggiotti, P., … & TASCA study group. (2015). The perceived burden of epilepsy: impact on the quality of life of children and adolescents and their families. Seizure, 24, 93-101.
7. Çilliler, A. E., & Güven, B. (2020). Sleep quality and related clinical features in patients with epilepsy: a preliminary report. Epilepsy & Behavior, 102, 106661.
8. Epilepsy: Impact on the life of the child. Epilepsy Foundation. (n.d.). Retrieved December 25,2022,fromhttps://www.epilepsy.com/stories/epilepsy-impact-life-child
9. Falco-Walter, J. J., Scheffer, I. E., & Fisher, R. S. (2018). The new definition and classification of seizures and epilepsy. Epilepsy research, 139, 73-79.
10. Johnson, E., Atkinson, P., Muggeridge, A., Cross, J. H., & Reilly, C. (2022). Impact of epilepsy on learning and behaviour and needed supports: Views of children, parents, and school staff. European Journal of Paediatric Neurology, 40, 61-68.
11. Kwong, K. L., Lam, D., Tsui, S., Ngan, M., Tsang, B., Lai, T. S., & Lam, S. M. (2016). Self-esteem in adolescents with epilepsy: psychosocial and seizure-related correlates. Epilepsy & Behavior, 63, 118-122.
12. Larson, A. M., Ryther, R. C., Jennesson, M., Geffrey, A. L., Bruno, P. L., Anagnos, C. J., … & Thiele, E. A. (2012). Impact of pediatric epilepsy on sleep patterns and behaviors in children and parents. Epilepsia, 53(7), 1162-1169.
13. Lew, A. R., Lewis, C., Lunn, J., Tomlin, P., Basu, H., Roach, J., … & Martland, T. (2015). Social cognition in children with epilepsy in mainstream education. Developmental Medicine & Child Neurology, 57(1), 53-59.
14. Mao, L., Wang, K., Zhang, Q., Wang, J., Zhao, Y., Peng, W., & Ding, J. (2022). Felt Stigma and Its Underlying Contributors in Epilepsy Patients. Frontiers in public health, 991.
15. Martinos, M. M., Pujar, S., Gillberg, C., Cortina‐Borja, M., Neville, B. G., De Haan, M., … & Chin, R. F. (2018). Long‐term behavioral outcomes after pediatric convulsive status epilepticus: a population‐based cohort study. Developmental Medicine & Child Neurology, 60(4), 409-416.
16. McLaughlin, R. M., Schraegle, W. A., Nussbaum, N. L., & Titus, J. B. (2018). Parental coping and its role in predicting health-related quality of life in pediatric epilepsy. Epilepsy & Behavior, 87, 1-6.
17. Nabbout, R., Camfield, C. S., Andrade, D. M., Arzimanoglou, A., Chiron, C., Cramer, J. A., … & Camfield, P. R. (2017). Treatment issues for children with epilepsy transitioning to adult care. Epilepsy & Behavior, 69, 153-160.
18. Ostendorf, A. P., & Gedela, S. (2017, November). Effect of epilepsy on families, communities, and society. In Seminars in Pediatric Neurology (Vol. 24, No. 4, pp. 340-347). WB Saunders.
19. Ronen, G. M., Streiner, D. L., & Rosenbaum, P. (2003). Health-related quality of life in childhood epilepsy: Moving beyond’seizure control with minimal adverse effects’. Health and Quality of life Outcomes, 1(1), 1-10.
20. Steiger, B. K., & Jokeit, H. (2017). Why epilepsy challenges social life. Seizure, 44, 194-198.
21. Subki, A. H., Mukhtar, A. M., Al-Harbi, R. S., Alotaibi, A. K., Mosaad, F. G., Alsallum, M. S., & Jan, M. M. (2018). The impact of pediatric epilepsy on children and families: a multicenter cross-sectional study. Clinical Practice and Epidemiology in Mental Health: CP & EMH, 14, 323.
22. Wagner, J. L., Sample, P. L., Ferguson, P. L., Pickelsimer, E. E., Smith, G. M., & Selassie, A. W. (2009). Impact of pediatric epilepsy: voices from a focus group and implications for public policy change. Epilepsy & Behavior, 16(1), 161-165.
23. Wo, S. W., Ong, L. C., Low, W. Y., & Lai, P. S. M. (2017). The impact of epilepsy on academic achievement in children with normal intelligence and without major comorbidities: a systematic review. Epilepsy research, 136, 35-45.
24. World Health Organization. (n.d.). Epilepsy. World Health Organization. Retrieved December 24, 2022, from https://www.who.int/news-room/fact-sheets/detail/epilepsy#:~:text=Globally%2C%20an%20estimated%205%20million,as%20139%20per%20100%20000.
25. Wright, I. (2018). Pediatric convulsive status epilepticus, epilepsy, and behavioral outcomes. Developmental Medicine & Child Neurology, 60(4), 338-339.