Volume : 09, Issue : 09, September – 2022
Title:
43.ROLE OF NURSE IN PALLIATIVE CARE FOR PATIENT WITH DISABILITIES
Authors :
Manal barakat almowallad, Haila Barakat almwald, Hanan Mohammed Albarmawi, Razaz ismail Hawsawi, Reham othman Hawsawi, Smeera Ateeq Almwalad, Basmah owaid allogmani, salwa abdurabh almwald, Latifa saif salim Alsubeai, Ghaliah Abdullah Aldawsari
Abstract :
The availability of nurses and their overall health expertise govern their position in palliative care. Acting as a coordinator and liaison between patient and family, other health professions, and different healthcare services is a prominent, but not always valued, role for nurses. The goal of this review is to create a detailed account of the district nurse’s role in providing palliative care. Papers in English reporting on aspects of the district nurse role in palliative care provision published up to 2022 were included. We searched electronic databases (Ovid Medline, Cinnahl, British Nursing Index, Embase, PsycINFO, and EBM reviews), as well as citation tracking and grey literature. This synthesis contains little that sheds light on the outcomes of care or explicitly guides practice. District nurses clearly articulate what they believe is important, but research in this area is limited and requires a renaissance to examine what is important: specifically, what district nurses do in practice; what patients and family carers think about what they do and do not do; and how district nurses can improve care outcomes.
Cite This Article:
Please cite this article in Manal barakat almowallad et al, Role Of Nurse In Palliative Care For Patient With Disabilities., Indo Am. J. P. Sci, 2022; 09(9).
Number of Downloads : 10
References:
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8. Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients’ perspectives. JAMA. 1999 Jan 13;281(2):163–168.
9. Maguire P, Pitceathly C. Key communication skills and how to acquire them. BMJ. 2002;325(7366):697Y700.
10. Ewing G, Todd C, Rogers M, Barclay S, McCabe J, Martin A. Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R. J Pain Symptom Manage. 2004;27(4): 287Y299.
11. Grande G, Barclay SIG, Todd CJ. Difficulty of symptom control and general practitioners’ knowledge of patients’ symptoms. Palliat Med. 1997;11:399Y406.
12. Quality-of-life evaluation: when do terminal cancer patients and health-care providers agree? J Pain Symptom Manage. 1998;15:151Y159.
13. Holmes S, Eburn E. Patients’ and nurses’ perceptions of symptom distress in cancer. J Adv Nurs. 1989;14:840Y846.
14. Maguire P. Improving communication with cancer patients. Eur J Cancer. 1999;35(10):1415Y1422.
15. Department of Health. Education and Support for District and Community Nurses in General Principles and Practice of Palliative Care. Crown; 2001.
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17. James N. Emotional labour: skill and work in the social regulation of feelings. Sociol Rev. 1989;37:15Y42.
18. May C. To call it work somehow demeans it: the social construction of talk in the care of terminally ill patients. J Adv Nurs. 1995;22:556Y561.
19. Kelly D, Ross S, Gray B, Smith P. Death, dying and emotional labour: problematic dimensions of the bone marrow transplant nursing role? J Adv Nurs. 2000;32(4):952Y960.
20. Luker KA, Wilson K, Pateman B, Beaver K. The role of district nursing: perspectives of cancer patients and their carers before and after hospital discharge. Eur J Cancer Care. 2003;12:308Y316.
21. Bloomer, M. J., Endacott, R., O’Connor, M., & Cross, W. (2013). The ‘disease’ of dying: Challenges in nursing care of the dying in the acute hospital setting. A qualitative observational study. Palliative Medicine, 27, 757–764.
22. Canning, D., Rosenberg, J. P., & Yates, P. (2007). Therapeutic relationships in specialist palliative care nursing practice. International Journal of Palliative Nursing, 13, 222–229.
23. Kaasalainen, S., Brazil, K., Williams, A., Wilson, D., Willison, K., Marshall, D., … Williams, A. (2014). Nurses’ experiences providing palliative care to individuals living in rural communities: Aspects of the physical residential setting. Rural and Remote Health, 14.
24. Austin, L., Luker, K., Caress, A., & Hallett, C. (2000). Palliative care: Community nurses’ perceptions of quality. Quality in Health Care, 9, 151– 158.
25. Mak, Y. W., Chiang, V. C. L., & Chui, W. T. (2013). Experiences and perceptions of nurses caring for dying patients and families in the acute medical admission setting. International Journal of Palliative Nursing, 19, 423–431.
26. King, N., Melvin, J., Ashby, J., & Firth, J. (2010). Community palliative care: Role perception. British Journal of Community Nursing, 15, 91– 98.
27. Kirby, E., Broom, A., & Good, P. (2014). The role and significance of nurses in managing transitions to palliative care: A qualitative study. British Medical Journal Open, 4, e006026.
28. Johnston, B., & Smith, L. N. (2006). Nurses’ and patients’ perceptions of expert palliative nursing care. Journal of Advanced Nursing, 54, 700– 709.
29. Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19, 349–357.
30. Schaepe, C., Campbell, A.-M., & Bolmsjo, I. (2011). A spider in the web: Role of the palliative care nurse specialist in Uganda—An ethnographic field study. American Journal of Hospice and Palliative Medicine, 28, 403–411.
31. Howell, D., Hardy, B., Boyd, C., Ward, C., Roman, E., & Johnson, M. (2014). Community palliative care clinical nurse specialists: A descriptive study of nurse–patient interactions. International Journal of Palliative Nursing, 20, 246–253.
32. Hopkinson, J. B., Hallett, C. E., & Luker, K. A. (2003). Caring for dying people in hospital. Journal of Advanced Nursing, 44, 525–533.
33. Devik, S. A., Enmarker, I., & Hellzen, O. (2013). When expressions make impressions—Nurses’ narratives about meeting severely ill patients in home nursing care: A phenomenological-hermeneutic approach to understanding. International Journal of Qualitative Studies on Health and Well-Being, 8, 1–11.
34. Ferrell BR, Temel JS, Temin S, et al. Integration of palliative care into standard oncology care: American society of clinical oncology clinical practice guideline update. J Clin Oncol 2017;35(1):96–112.
35. Selecky PA, Eliasson AH, Hall RI, et al. Palliative and end-of-life care for patients with cardiopulmonary diseases: American College of Chest Physicians position statement. Chest 2005;128(5):3599–610.
36. Braun LT, Grady KL, Kutner JS, et al. Palliative care and cardiovascular disease and stroke: a policy statement from the American Heart Association/American Stroke Association. Circulation 2016;134(11):e198–225.
1. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments. The SUPPORT Principal Investigators. JAMA. 1995 Nov 22-29;274(20):1591–1598. Erratum in: JAMA. 1996 Apr 24;275(16):1232.
2. National Consensus Project for Quality Palliative Care. 2008. Clinical Practice Guidelines for Quality Palliative Care. http://www.nationalconsensusproject.org.
3. Meir DE, Bishop TF. Palliative care: benefits, services, and models of care. In: UpToDate, Basow DS, editors. Waltham, MA: UpToDate; 2011.
4. Saunders, C. M. (2003). Watch with me: Inspiration for a life in hospice care. Sheffield: Mortal Press.
5. World Health Organization (2011). Definition of palliative care. Retrieved from http://www.who.int/cancer/palliative/definition/en/.
6. UN News Centre (2014). New UN report identifies unmet need for palliative care worldwide. Retrieved from http://www.un.org/apps/ne ws/story.asp?NewsID=47024#.WHjuqVXhBhE.
7. Kuebler KK, Heidrich DE, Esper P. Palliative & End-of-Life Care: Clinical Practice Guidelines. St. Louis, MO: Saunders/Elsevier; 2007.
8. Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients’ perspectives. JAMA. 1999 Jan 13;281(2):163–168.
9. Maguire P, Pitceathly C. Key communication skills and how to acquire them. BMJ. 2002;325(7366):697Y700.
10. Ewing G, Todd C, Rogers M, Barclay S, McCabe J, Martin A. Validation of a symptom measure suitable for use among palliative care patients in the community: CAMPAS-R. J Pain Symptom Manage. 2004;27(4): 287Y299.
11. Grande G, Barclay SIG, Todd CJ. Difficulty of symptom control and general practitioners’ knowledge of patients’ symptoms. Palliat Med. 1997;11:399Y406.
12. Quality-of-life evaluation: when do terminal cancer patients and health-care providers agree? J Pain Symptom Manage. 1998;15:151Y159.
13. Holmes S, Eburn E. Patients’ and nurses’ perceptions of symptom distress in cancer. J Adv Nurs. 1989;14:840Y846.
14. Maguire P. Improving communication with cancer patients. Eur J Cancer. 1999;35(10):1415Y1422.
15. Department of Health. Education and Support for District and Community Nurses in General Principles and Practice of Palliative Care. Crown; 2001.
16. Booth K, Luker KA, Costello J, Dows K. Macmillan cancer and palliative care specialists: their practice development support needs. Int J Palliat Nurs. 2003;9(2):73Y79.
17. James N. Emotional labour: skill and work in the social regulation of feelings. Sociol Rev. 1989;37:15Y42.
18. May C. To call it work somehow demeans it: the social construction of talk in the care of terminally ill patients. J Adv Nurs. 1995;22:556Y561.
19. Kelly D, Ross S, Gray B, Smith P. Death, dying and emotional labour: problematic dimensions of the bone marrow transplant nursing role? J Adv Nurs. 2000;32(4):952Y960.
20. Luker KA, Wilson K, Pateman B, Beaver K. The role of district nursing: perspectives of cancer patients and their carers before and after hospital discharge. Eur J Cancer Care. 2003;12:308Y316.
21. Bloomer, M. J., Endacott, R., O’Connor, M., & Cross, W. (2013). The ‘disease’ of dying: Challenges in nursing care of the dying in the acute hospital setting. A qualitative observational study. Palliative Medicine, 27, 757–764.
22. Canning, D., Rosenberg, J. P., & Yates, P. (2007). Therapeutic relationships in specialist palliative care nursing practice. International Journal of Palliative Nursing, 13, 222–229.
23. Kaasalainen, S., Brazil, K., Williams, A., Wilson, D., Willison, K., Marshall, D., … Williams, A. (2014). Nurses’ experiences providing palliative care to individuals living in rural communities: Aspects of the physical residential setting. Rural and Remote Health, 14.
24. Austin, L., Luker, K., Caress, A., & Hallett, C. (2000). Palliative care: Community nurses’ perceptions of quality. Quality in Health Care, 9, 151– 158.
25. Mak, Y. W., Chiang, V. C. L., & Chui, W. T. (2013). Experiences and perceptions of nurses caring for dying patients and families in the acute medical admission setting. International Journal of Palliative Nursing, 19, 423–431.
26. King, N., Melvin, J., Ashby, J., & Firth, J. (2010). Community palliative care: Role perception. British Journal of Community Nursing, 15, 91– 98.
27. Kirby, E., Broom, A., & Good, P. (2014). The role and significance of nurses in managing transitions to palliative care: A qualitative study. British Medical Journal Open, 4, e006026.
28. Johnston, B., & Smith, L. N. (2006). Nurses’ and patients’ perceptions of expert palliative nursing care. Journal of Advanced Nursing, 54, 700– 709.
29. Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19, 349–357.
30. Schaepe, C., Campbell, A.-M., & Bolmsjo, I. (2011). A spider in the web: Role of the palliative care nurse specialist in Uganda—An ethnographic field study. American Journal of Hospice and Palliative Medicine, 28, 403–411.
31. Howell, D., Hardy, B., Boyd, C., Ward, C., Roman, E., & Johnson, M. (2014). Community palliative care clinical nurse specialists: A descriptive study of nurse–patient interactions. International Journal of Palliative Nursing, 20, 246–253.
32. Hopkinson, J. B., Hallett, C. E., & Luker, K. A. (2003). Caring for dying people in hospital. Journal of Advanced Nursing, 44, 525–533.
33. Devik, S. A., Enmarker, I., & Hellzen, O. (2013). When expressions make impressions—Nurses’ narratives about meeting severely ill patients in home nursing care: A phenomenological-hermeneutic approach to understanding. International Journal of Qualitative Studies on Health and Well-Being, 8, 1–11.
34. Ferrell BR, Temel JS, Temin S, et al. Integration of palliative care into standard oncology care: American society of clinical oncology clinical practice guideline update. J Clin Oncol 2017;35(1):96–112.
35. Selecky PA, Eliasson AH, Hall RI, et al. Palliative and end-of-life care for patients with cardiopulmonary diseases: American College of Chest Physicians position statement. Chest 2005;128(5):3599–610.
36. Braun LT, Grady KL, Kutner JS, et al. Palliative care and cardiovascular disease and stroke: a policy statement from the American Heart Association/American Stroke Association. Circulation 2016;134(11):e198–225.